My trip down cancer Highway Part I
I started having a pain in my back in in mid to late Oct. 2013 it was under my right shoulder blade and felt about the size of a quarter the pain would come and go. I thought it was from helping my sister move furniture and it would go away. During November it seemed to get worst and last longer, by thanksgiving it was a constant pain. I tried putting cold and heat on it; I also massaged the spot and tried taking Advil and or Ibuprofen all to no avail. On thanks giving day I tried Aleve that also did not help, I also tried smoking pot and that did relieve the pain but got me all mess in the head so it may have been that it just got my mind off it for the day.
In early Dec the pain began to spread all across my shoulders, around the 15th of Dec I went to a chiropractor thinking it was a pinched nerve .He popped my back and neck and that at first seem to ease some of the pain, however a few days later the pain was again constant and very severe and nothing helped. Around Dec 18th I couldn¡¯t get out bed as when I tried to pull myself up my arms felt like they were ripping from the shoulder sockets. I lay in bed for 2 days then on Dec 21 I forced myself up because I started vomiting and diarrhea. over the next 3 days I laid on the couch and messed myself several time as I was in severe pain across my shoulder and my chest and back ( at some point during all this I started night sweats from my waist up ,my leg would be cold but my upper body and head sweating)
On the night of Dec 24th it was so bad I prayed as hard as I could and asked god to ease the pain so I could shower and clean up and I would go to the hospital. (I was not the type to go to Drs. or the hospital as I had an experience at around age 5 where I was tied to a crib and told to just wet the bed this was at Chelsea naval hospital. I ended up wetting the bed till age 14 and on occasion after that till about age 18) about 4 in the morning the pain went away. Over the next 3 hrs. I was able to muster the strength to shower, shave, get dressed, having done that I sat down for about 15 minutes and the pain came back. I got on my motor scooter and drove to west Jefferson hospital about a mile and a half away.
Upon my arrival they immediately did an EKG and started a glisten IV they also did a blood test. About an hour later the ER Dr. told me my blood work was a mess and he thought it was leukemia but was going to admit me and order a bone marrow test to confirm it. I was admitted and given 2 blood transfusions the next day I was given a 3rd blood transfusion and a bag of platelets and a bag of potassium. I was then sent for a bone marrow test. Over the next 2 days while awaiting the test results I was drugged with dilator and slept most of the time. on sat Dec 28th the oncologist Dr. told me the results were that I had bone marrow cancer called CML( Chronic Myeloid leukemia) The Dr. explained that I was in a late stage and had to be put on a drug called Gleevec immediately or I would not live to March of 2014, when I would be eligible for Medicare. He further told me that Gleevec even at this late stage would control or cure this leukemia but the cost for the medicine was about $8000.00 a month.
I had no insurance so I was stabiled and discharged on Dec. 31 with a letter of instruction to go to LSU university hospital for free care. The discharged letter and paperwork explained my records were already sent to university Hospital and I was expected, I should go there on Jan 2nd.
I went to university hospital on Jan 2nd letter in hand and discovered that the free care clinic had closed down 2mts prior it was now an outpatient clinic. I spoke with a nurse and showed her the letter she told me to go to the emergency room and they would help me. Letter in hand I went to the ER and was seen by a Dr. whom while angry at reading the letter said she would help me. after several hours she told me I would be accepted into their free care program gave me a 14 day prescription for Gleevec and a script for Percocet¡¯s, told me to start the Gleevec and scheduled me to see a Dr.in the oncology dept. for Jan 7th.
I went to Wal-Mart to fill the script and the cost was $3600.00 for 28 pills. I called the Dr. whom gave me the script and she told me go to the university pharmacy the next day and they would fill it .I did that and the pharmacy refused me because I did not have a Louisiana state Id or Driver license as well as a free care card. They did put me in touch with a social worker in the oncology dept. whom handles all Gleevec patients. The social worker told me they would give me the Gleevec at my appointment on the 7th.
I met with Dr. Ruiz of the LSU oncology dept. on Jan 7th his first words to me after reviewing the records from west Jefferson hospital were there was something wrong in the diagnoses. He ordered blood test and told me go home for now and he would call me after he received my blood test results. 2 hrs. Later Dr. Ruiz called and told me after reviewing my blood test he wanted me hospitalized immediately .and that I should go to the to the ER as soon as possible.
On Jan 8th Dr. Ruiz came to my hospital room and did another bone marrow test explaining to me that the 1st test did not show that I had a Philadelphia chromosome and therefore I could not have CML so this time they were going to do further testing of my bone marrow. (He showed me the bone marrow he had extracted from my hip, smiling and quite proud of the size of the piece he had gotten out) I was discharge from the Hospital on Jan 11th and given a Jan 14th appointment with Dr. Ruiz. During the full period of time from Jan second to Jan 14 I was in moderate to severe pain in my shoulders arm and sternum taking Percocet as needed.
On Jan 14th I met with Dr. Ruiz and the head of the oncology dept. a Dr. BOGART. (I had heard stories about Dr. Bogart in the waiting room both on the 7th and 14th. stories were he was a cold hearted straight talking bastard known to scream at patients in the waiting room and the ER). Dr. Bogart explained that I had MDS (myloidsplastic syndrome) not CML. He explained I had a year to live at the outside possibly less depending on my cryogenic results, that I could receive comfort care, which was blood transfusions and pain medicine as needed or I could try 6 months of chemo which only helped 1 out of 4 patients .Dr. Bogart further explained that my body was producing baby or immature red blood cell at such a fast pace it was crowding out the mature RBC. That at my age I should have about 30 % bone marrow but my bones were packed solid. He told me to think about what I wanted to do for a few days before deciding. He then just walked out of the room. My head was spinning I couldn¡¯t think I turned to Dr. Ruiz and asked what do I do he said go home I¡¯ll call you next week. I left his office stunned to the core. The elevators are less than 50 feet from Dr. Ruiz office door as I was walking to toward them I heard Dr. Ruiz call for the next patient I turned and we locked eyes, he turned away. At that moment I never felt so alone in my life it was as if I was just a piece of meat tossed to the dogs.
Over the next 3 days I talked with my brothers and sister about what I should do. All of them thought I should try the chemo. On Friday the 17th I talked with my only biological son it was a very emotional conversation we both struggled to keep composed .he wanted me to try the chemo too. (I have 5 children 4 boys and a girl, 2 of my sons have died one as an infant and one at age 29 from ARD¡¯s, my other 2 children a daughter and a son I raised from the ages of 4 and 5 when I married their mother, I adopted them at ages 11 and 12. My daughter has had MS since age 28. When I got divorced from their mother after 27 years of marriage they turned their back on me and we haven¡¯t spoken but a few time in 12 years. This just proves blood is thicker than water. I have 2 grandchildren from my adopted son that I have only seen twice since the divorce; it¡¯s all so sad and hurts greatly. I take responsibility for not trying harder to have a relationship with them after the divorce.)
After speaking with my son I called Dr. Ruiz and told him I would like to try the chemo. He said he would set it up and the Chemo infusion unit would contact me Monday Jan 20th... I did not hear from the chemo unit. As the days past my pain got worst it felt like my arms were being ripped from the sockets and my back pain was from the top to the bottom I was getting shortness of breath and was very tired all the time on Friday I called Dr. Ruiz he told me they were trying to get a loan of the type of chemo I needed (Dacogen) from another hospital. He also had me come in and get more Percocet¡¯s. 20 minutes after I talked to him the chemo unit called and set an appointment for Feb 3rd.
Over the next 8 days I was taking so many Percocet¡¯s for the pain I became constipated and believe me I learn the hard way what shitting a brick really felt like. By the time Feb. 3rd came I was in such severe pain and so fatigued I had to rest after walking about 50 feet. When I arrived at the chemo unit that Monday morning for my first treatment I barely made it. My blood was tested and I received chemo, I left there in the same shape I arrived. Later that evening the pain started to ease. On Tuesday morning I arrived for my second treatment still with shortness of breath and fatigued but not in as much pain .by Wednesday treatment my pain was gone and I was breathing better but still quite tired. For Thursday treatment I had no pain and was breathing petty good fatigue was just an overall tiredness. On arrival for Fridays treatment I felt good had the treatment and went home. I was happy that the chemo seemed to help me so much. On Friday while talking to a nurse another patient overheard us and he said to me take it one day at a time guy and enjoy the good days .I would soon know exactly what he meant.
On Sat I expected to be vomiting and shitting from the chemo but instead the server pain returned with a vengeance. I was eating Percocet¡¯s and they didn¡¯t help at all, my arms shoulder ribs back and hips felt like my bones were being crushed. Sunday I started smoking Marijuana with the Percocet¡¯s while it made me high as a kite it helped with the pain. sometime Sunday night stoned out of my mind I fell asleep and when I woke Monday morning the pain was bearable as I attempted to get up I was totally exhausted and ended up just lying in bed most of the day, the pain went away sometime in the afternoon. On Tuesday 9th of Feb. I was able to get out of bed but had shortness of breath and felt very tired over the next 15 days the tiredness turned to extreme fatigue and my breathing got so bad I could not walk more than 10 or 15 feet without resting, my stools had also turned black so I knew that meant internal bleeding. Around the 21st I stopped eating as it was too exhausting to try. On Monday the 24th I needed to do something or I wasn¡¯t going to make it. I called Dr. Ruiz cell phone and it went to his voice mail which was full. I tried calling over and over but he never answered. Not knowing what else to do I called the appointment desk at the oncology clinic after explaining to the nurse about Dr. Ruiz phone and my condition she said she would try to reach his office. An hour later Dr. Ruiz office called me and I explained my condition they said they would try to reach the doctor but I should get to the ER right away.
I called a cab and went to university hospital ER the cab driver helped me inside. The waiting room nurse saw me and got me a wheel chair I explained what was happening and she took me right away for an EKG she said I was extremely pale. After the EKG they drew blood when they got the results they put a mask on me and moved me to a private room and put me on reverse Isolation my blood count was 5/ crits19 they attempted 6 time with 6 different DR¡¯s and nurse to start an IV but my veins would collapse .They then explained that they had to get blood in me so they were going to put a large IV in my nexk as we were reaching a critical situation. A Dr. put in the IV and they started a transfusion, at the same time they put a second IV into my inner thigh to reach my main artery and they injected me with dilator. (Later I would see this IV needle was over a foot long)
I was then taken for x rays and a cat scan before being admitted and moved to a private room where I was given 2 more blood transfusions and 2 infusions of platelets. The next day they scoped my stomach and colon to try and locate the source of the bleeding. Turned out the bleeding was in my stomach were the veins come together known as AVN. they were not able to cauterize the veins as my platelets were and are still too low. I was released from the hospital on Friday Feb 28th and I start my second round of 5 days of chemo on March 3rd. This time the Dr. told me they will monitor my blood more closely.
Part II. Why I stopped Chemo
When I was first diagnosed with MDS, the Doctors told me I had a year at the outside to live. I could try Chemo treatments but they only help 1 out 4 of patients or about 25 %. If chemo worked I would live about 2.to 3 years. They further told me there was no approved cure. I was going to die from this disease.
They told me the truth as they belive it. Over the past 3 months I have researched this disease and found that the median life expectancy from diagnosis to death is 10.2 months without chemo treatments and 19.2 months if chemo treatments worked.
In my research I read published medical studies from Spain, England, Germany, Canada and 2 studies from the United States. One study from Harvard University and the second from the University of Virginia. The Virginia study was shut down by the U.S Drug Enforcement agency and all research papers were siege and destroyed.
All of these studies show that Cannabis oil helps and or cures leukemia and many other Cancers. The research showed that it also helped people that had Chemo treatments but worked best in those whom did not do chemo treatments. The research also showed that the U.S. dept. of health holds several patents on Cannabis, the most important one being a 2003 patent that states Cannabis helps or cures cancer. The Canadian study as well as England and Spain say Cannabis oil cures Leukemia. These studies also show that Lyme disease and epilepsy are also cured or controlled using Cannabis oil. In aug of 2013 Dr. Sanjay who appears on CNN as there medical expert went public and said his research showed Cannabis controls epilepsy and he apologized for speaking out against it ,He also called for clinical trials here in the United states.
Cannabis better known as Majauna is a scheduled 1 drug in the United States. A requirement for a schedule 1 drug is it must not have any Medical Value.
All of this research shows that the US government is surpressing the medical value of Cannabis oil and people are dying of Cancer and other diseases. I will let you decide whom they are protecting.
Seeing as I have nothing to lose and everything to gain, I stopped Chemo before major damage is done to my other organs as I have found a source where I can obtain the oil and I have learned how to make it myself.
Here is a very short recap for New readers.
I was dianoged with Myloidsplastic syndrome in Jan of 2014. This is bone marrow cancer The medium Life expectancy from diagnoses to death is 10.2 months if you do chemotherapy and it works life expenccy is 19.2 but either way this disease kills in about 2 years. I did 3 treatments of chemo and stopped and I now only use cannabis oil (paste from Newcure.org) based on the above I should be dead some time between late Oct. 2014 and Jan 2015.
My last chemo treatment was April 4 ,2014. I started the cannabis oil on May 6th 2014 . When I first started the cannabis oil I could not walk more than 50 or 100 feet before I needed to rest, I had server pain in my shoulders back and arms were our bone marrow is produced, my legs and feet were cold and spongy while my upper body sweated all the time I had extreme sweats and cold at night. My body felt like a bucket of paint were someone had pored other paint colors and they did not mix. In general I was dying and dying fast.
The 1st week or so on the oil I was very tired and slept as many as 18 hrs a day. I then adjusted my daily dosage so I had a better tolerance. Slowly the above systems started to ease and I began to be able to walk and get around again. By July 3rd I was walking 2 miles a day and feeling 200% better. I had great hopes that I would beat this disease.
During the 7 weeks from May 6th to July 3rd my Red blood count had slowly gone up from a low of 5 hemoglobin. to 9.1 (13.000 + is normal) and my platelets held, so I did not need blood transfusions or platelets ( during my chemo treatment I was given 6 blood transfusions and 4 bags of platelets)
On July 1st I started have problems swallowing ,the pain in my chest got so bad I went to the emergency room. I was admitted into the hospital were I was diagnosed with a yeast infection in my chest ( this is a common side affect of chemo treatment and can occur months after your last treatment) My blood count fell to 7.5 and my platelets dropped to under 20,000 ( normal platelets are 150,000 plus) I was given 2 blood transfusions and a bag of platelets, after 5 days I was released from the hospital. The very next morning I awoke urinating blood and passing blood clot after blood clot. Again I went to the emergency Room where for 8 hrs they flushed blood and clots from my bladder .They sent me home and told me to see a urologist. 6 hrs later I was back at the hospital passing blood and clots .This time I was admitted and they flushed my bladder for 3 days but the bleeding did not stop. I was then taken to the OR for bladder surgery .The urologist doing the surgery found server bleeding and 5 surface tumor that were found to be cancerous, he cauterized the bleeding veins and the tumor sites 3 days later I was released. I was still urinating blood but was told this would stop on its own in a few days. The very next Day I started having bladder spasms so back to the ER I went again I was admitted and over the next several days I was left to bleed as they kept giving me blood and platelets to build up my system to do a second bladder surgery I was in a lot of pain during these 8 days and I come down with a hospital staff infection to boot. As it turned out the Dr whom did the 1st surgery miss cauterizing one of the tumors and they did not know how to stop the bleeding as they could not get my platelet count high enough to perform the second surgery. The urologist and my oncologist were in a battle .my oncologist demanding the urologist stop this bleeding that they caused and the urologist wanting the oncologist to do something. I was finally given medicine used in Amicar (used to stop bleeding in hemophilic¡¯s I then had a second bladder surgery .I spent 28 day in the hospital and was released on July 31st.
On my own and as ordered by my oncologist whom has seen the results of using the cannabis oil I have started using it again. after 5days my blood count has risen to 10.1 and my platelets are holding steady at 38,000.
Cannabis oil works will I survive my hospital stay I don¡¯t know as I am exhausted from it, but feel like I am starting to get better already. Today I walked about ¨ö a mile ,my pain is gone and I am eating like a horse. I do have pain urinating and a new bladder infection. I will update again in Oct or Nov if I am a live . You can get the cannabis oil Paste from Newcure.org
Monday aug 18
Got up had coffee made my breakfast and around 8:30 I started to get the pain in my stomach. Around 9am my visiting nurse called she would be here in an hour to draw my blood. When the nurse arrived she wanted to call an ambulance but I refused and said I would call a cab. I took the cab to the emergency room. After being examined and having a amnoscope the dr told me I had a gallstone blocking my duct he gave me morphine for the pain and adavan to relax my mucsles to reduce the spasmes. I fell asleep A Dr woke me up and told me that the gallstone was blocking my duct and they had to do emergency surgry to remove it or it would cause problems with my liver and kidneys. I was taken to surgery and had the procedure done.
Tuesday morning a surgen came to my room and told me they had to remove my gall bladder So they were going to try and build up my plateletts but they were going to have a meeting first because of what happen with my bladder surgerys. About 2hrs later the Dr whom did the surgery called me on the phone said he was in the building and was very busy but he would try and get up to see me. He then told me that when he went in last night he did not find a gallstone but he did find sludge,He asked if my urine was dark and I told him I have only gone once since surgrey but it was very dark He said that was the sludge coming out . He also talked about blasting my gall bladder to break up what he said were a lot of stones. I told him about the surgen that come in and said they were going to take it out ,His reply was ¡° I don¡¯t know who would do that with your condition¡±. He then told me he ordered a speical MRI test and they would be bring down for that shortly. Time now was about 11:30 am.
10 minutes or so later I was taken for the MRI when I got there I had to wait because another patient was brouhgt in and they only had the one machine. When I was finally taken in the 2 nurses I presume asked me if I was clasuphobic as my whole body goes into the machine I told them no. they put the shields on me and strapped me down then put head phones on me saying it gets noisey in this room.
I was never told in any way shape or form that the noise would be inside the machine and it would be like a pile driving machine for about 20 pounds then a horn as loud as u ever heard would sound then thepounding again. The alleged nures did give me a button to press if I needed them, I just laid the button done and didn¡¯t give it a thought at the time. A few minutes into 30 minutesof pure hell I tried to find the button I couldn¡¯t find it the nures called over the earphone to stop moveing around I had to lay still. It was like being in a coffin I would look up and see the white top as they drove the piling for a hi rise building. I finally located the button when they come on the ear phones I told them get me the fuck out of here I have had enough. The nurse reply you only have 17 sec left and she finished that 17 sec. . MY head was pounding, my right leg and right arm and hand had become numb, I was in a panic. When I got out of that machine I screamed at them nurses you mother fucker never told me that what was gona happen I should have been for warned, My head is pounding The Blonde nursed turned to the other nurse and said good job (Name) and they started laughing. The blonde nurse came to my strecher a few minutes later and tried to claim they told me. She then left because her shift was over. I was in a totall panic rage an anger like I have never had my life and all I want was to get out of that hospital. About 20 minutes later I got back to my room got my clothes and was getting dressed to leave when a nurse came in and told me I couldn¡¯t leave my liver was failing and it was going to get worst. This is the 1st I had heard this, she called for a dr and ask if she could take out my 3 IV¡¯s before I left.. she had 1 IV out when the dr came and he told me I had liver failure and wanted me to sign a release that I was leaving against medicial advice .I told him I was not signing anything that this hospital let me bleed for more than 8 days last month and I wasn¡¯t going to go throught that again and them sick bastards laughing down at the MRI. I left. In a double panic.as I write this I don¡¯t know what to do. .Why are my organs failing. I don¡¯t know. MDS does not cause organ failure. MDS kills by stroke or heart attack ,is it the 3 treatments of chemo I did ,again I don¡¯t know.
I do know my my Death certificate has been signed and that may have really happen in july when I bled for days on end.
When I posted part 4 many Readers and CGI members offer up their prayers of support here is my resposen
Thank You . Your Prayers were heard. I calmed down around 3 o'clock in the morning. At 9am my brother took me to the ER at Lahey Clinic, the ER waiting room was empty I was taken right in and spoke with the Dr for about 40 min. I was able to tell him everything that had gone on since July 3rd when I come down with a yeast infection in my chest. Later he would bring over 3 interns and ask me to tell them the complete story. It took an hour or so, but they listen very attentively. I'm sure that afterwards the Dr told them ,that is a story you never want a patient to experience or have to tell. what a lesson for those interns.
My liver was not failing the counts had shot up but that was do to the Gall Bladder, I was taken to surgery and they removed my gall bladder .I am back at home now. They explained that the gallstones were caused by the up and down of my blood counts over the past several months, the hemoglobins release a bile causing them. I should be ok now. back on the cannabis oil hope it can continue to help me through this mess. again I thank all of you for the mircale of the empty ER.
My Trip down cancer highway Part V
I have received many emails asking questions and offering advice, as I take this trip down cancer highway. I read all of them and look at all the alterative therapy¡¯s for cancer. Keep sending them. The biggest things I am asked in the emails in one way or another , to paraphrase is :
1Why did you write your journal?
2 Why did you decide to go public with your journal?.
3 Why Cannabis and not another alterative cure?
Those are the question I will try to explain to you in this posting.
When I was first misdiagnosed 3 Days after Christmas 2013 and then diagnosed with MDS on Jan 14 2014, I had no intention to write about it or share my illness with anyone but family and close friends.
After the first 5 day cycle of chemo I got very sick and came close to dying as I laid in the hospital I began to think about my Life and my disease and decided I would write a journal for my Kids and to help me deal mentally about what I was facing. I decided that I had to write it raw and from the heart and just put it out there even if it made me look bad ,crazy or strange. I would just write the whole truth, wherever my thought and the story took me. As it turns out I am writing one journal for myself and public consumption and have had long talks with my children and told them ,ask me anything about my life and I will tell you 100% of the truth good bad or ugly.
After I wrote Part I read it over several times and shared it with a few close friends. whom all as it turned out thought I wrote just to them. It having that effect on my close friends¡¯ I just felt I should publish it ,and if it helped another person going through MDS or other forms or cancer that¡¯s great or if it just causes one person to go visit there aging parents or grandparents or visit the local nursing home, all the better.
As to why I chose cannabis oil over other alterative cancer treatments. I did research a few years ago on cancer treatments when my younger sister came down with colon cancer and that research kept leading me to cannabis. My sister of course thought marijuana was an evil drug and only drug addicts smoked and she wanted nothing to do with it.
Most of the alterative treatments I found were built around diets that only a rich man with a personnel shopper and a chef could afford to strictly follow , or I found it very skeptical as to there working, And there were others I just would just not do .
So when I did the research again for my self, I started were I left off a few Years ago but I dug a lot deeper into the medical report from around the world. While there is no long term medical trials or peer reviews on cannabis or its healing property¡¯s., All of the reports I found says there were signs of shrinking tumors from brain tumors to breast tumors and many other tumor sites. I also read prilimary reports of it curing leukemia in several instances. I also discovered that the US Dept of health held patents on cannabis all of this combined, convince me that I would fight my cancer with cannabis oil .I looked at it as my own clinical trial, If it works fantastic, if it doesn¡¯t I have lost nothing as the medical profession has no cure for MDS and I was going to die from it in a year or 2 max anyway. I still feel that way today. Cure me or kill me nothing lost nothing gain or just possibly everything gained for me and many others.
I thank you for your support and I will continue to write 100% of the truth as this saga goes on and I will be as candid about it as humanly possible.
I have had an interesting life from my own major battles with the IRS, (book was written about that in 2000) ,Defending myself in court and being acquitted , battling and winning against the largest privately owned trucking company in the United states to pay $7.2 million in back pay to 1400 owner operators, I spent 2 months at the home of Ed and Elaine Browns home as they held off the US Marshalls, to having my own business and a great family. I had the toys and most of the trimming during my 65 years. Maybe this journal gives a little back who knows. Believe it my kids have had some tough questions for me and I love it.
My trip down cancer highway Part VI
Those that have followed my trip down cancer highway are aware that I spent better than 6 weeks in the hospital during July and Aug. I had 2 bladder surgery¡®s ,Gall Bladder surgery and a yeast infection in my chest . This was all brought about by side effects from the chemo treatments, I had in Feb March and April. I also got a VRE infection while hospitalized.
I was not able to do my cannabis oil while in the Hospital. When I was released on Sept. 1st I Immediately started the cannabis oil again. I have now been back on the oil for 25 days .( More on this below)
I now have all new Drs. at Lahey clinic my new oncologist is a specialist in MDS and Leukemia type Cancers. On Sept. 7th she called me and said my blood work was showing 23% blood blast ( blast are immature blood cells, any thing over 20% is considered full blown Leukemia.( Normal blast are 0 to 2%) This phone call was not completely unexpected as about 20% of MDS patients¡¯ progress to AML ( Acute myeloid Leukemia) AML Kills in weeks to 3 or 4 months The only treatment is induction Chemo which is high doses of Chemo and Radiation therapy requiring several week in the hospital. This strips all of your bone marrow The hope is that the new bone marrow will be cancer free or has been lowered to a survivable % ,this is followed by a bone marrow transplant which is at least another month in the hospital. I gave it some thought and decided that was not for me. I was originally told I had a year to live at best so why waste anymore of my year in a hospital for a treatment that may or may not work. ( see chart below on chemo results)
The bottom line is chemo kills more patients than it "cures". Most of those deaths are the result of liver or heart failure. As the above chart indicates, the five year survival rate due to chemo is only 2.1% (a similar study in Australia found the rate to be only 2.3%). Thus on average fewer than 3% of patients who opted for chemo survived longer than did those who opted to not undergo chemo. But even that meager statistic is misleading in two key ways:
First of all, though survival rates are slightly higher for the first couple of years compared to those who opted out of chemo, after the third year the survival rate for those who opted out is greater than those who were treated with chemo and the gap widens significantly every year after that.
Secondly, and perhaps most important of all, the survival rates compare all of those who either undergo chemotherapy or decide against it. That includes the very large number of people who do little or nothing to address their cancer naturally and merely forego chemo. If chemo survival rates were compared with those of people who not only opted out of chemo, but also chose a non-invasive natural protocol to eliminate the toxins and other causes of cancer, to boost their immune systems and to attack the cancer naturally without inflicting damage to the rest of the body, there would surely be no comparison
Today the Dr told me that my blood work taken by an outside Lab 2 days ago shows 6% blasts. The Dr. then said , she did not have confidents in that number and explained that blast counts are done by lab tech¡¯s, not a machine ,she further explained that the blast counts at Lahey are done by a pathologist and the blood work I had an hour before I met with her showed 17% blast.
While that is down from the 23% it is far from being good.
I reminded her of what a summer I put in and told her that I was slowly getting back to where I was in June as I had started the cannabis oil again and My blood counts shows my Hemoglobin¡¯s, White blood cells and platelets have held steady or improved, plus the last 3 test show my blasts dropping. After she thought about this we agreed something was happening I would just continue on the cannabis Oil and we would keep close watch on all the counts. Till push come to shove and we¡¯ll decide what to do then.
As for me I have great confidence that the oil is working.